Estrategias psicosociales para fortalecer el afrontamiento de la enfermedad de Parkinson: perspectiva de pacientes, familiares y profesionales sociosanitarios = Psychosocial strategies to strengthen the coping with Parkinson's disease: Perspectives from patients, family carers and healthcare professionals

  1. Navarta-Sánchez, M.V.
  2. Caparrós, N.
  3. Ursúa Sesma, M.E.
  4. Díaz de Cerio Ayesa, S.
  5. Riverol, M.
  6. Portillo, M.C.
  1. 1 Universidad de Navarra
    info

    Universidad de Navarra

    Pamplona, España

    ROR https://ror.org/02rxc7m23

  2. 2 Asociación Navarra de Parkinson, Pamplona, Navarra, Spain
Revista:
Atencion Primaria

ISSN: 0212-6567

Año de publicación: 2017

Volumen: 49

Número: 4

Páginas: 214-223

Tipo: Artículo

DOI: 10.1016/J.APRIM.2016.06.001 SCOPUS: 2-s2.0-84994603208 WoS: WOS:000400322100004 DIALNET GOOGLE SCHOLAR

Otras publicaciones en: Atencion Primaria

Resumen

Objective: To explore the main psychosocial aspects which have influence on the coping with the disease in patients with Parkinson's disease (PD) and their family carers. Design: An exploratory qualitative study which constitutes the second phase of a mixed-methods project. Setting: Multicenter study carried out in Navarre in 2014 in collaboration with Primary Care of Navarre Service of Health-Osasunbidea, Clínica Universidad de Navarra and Navarre Association of Parkinson's patients. Participants: A total of 21 participants: 9 people with PD, 7 family carers and 5 healthcare professionals. Method: Participants were selected through purposive sampling. Focus groups were conducted until a suitable saturation data was achieved. Transcriptions were analysed by 2 researchers through a content analysis. Results: Three aspects that affected how patients and family carers coped with PD were identified: features of the clinical practice; family environment, and disease's acceptance. Taking account of these findings, some strategies which could foster these aspects from primary healthcare are suggested in order to improve the adjustment to the disease in patients and family carers. Conclusions: The healthcare in people with PD should have an integral approach that tackle the symptoms control in patients and also deal with psychosocial aspects that influence on the coping with the disease, in patients and family carers. © 2016 Elsevier España, S.L.U.