The transition of palliative care from the hospital to the homea narrative review of experiences of patients and family caretakers

  1. Edier Mauricio Arias Rojas
  2. Cristina García Vivar
Revista:
Investigación y educación en enfermería

ISSN: 0120-5307

Año de publicación: 2015

Volumen: 33

Número: 3

Páginas: 482-491

Tipo: Artículo

DOI: 10.17533/UDEA.IEE.V33N3A12 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: Investigación y educación en enfermería

Objetivos de desarrollo sostenible

Resumen

Objetivo. Identificar, analizar y sintetizar los estudios cualitativos publicados sobre las experiencias de pacientes y cuidadores familiares en la transición de cuidados paliativos del hospital al hogar. Metodología. Se realizó una revisión narrativa en las bases de datos PubMed, Cochrane Central, ScienceDirect, Ovid Nursing, CINALH, SciELO y Bireme, desde 2000 a 2014. Resultados. Tras el análisis y comparación de los datos, los resultados se agruparon en seis temas: (1) la díada y su conocimiento ante el diagnóstico y pronóstico; (2) emociones experimentadas por el cuidador familiar y el paciente durante el alta; (3) comunicación efectiva entre los actores del cuidado; (4) educación para el cuidado de la persona en el hogar; (5) apoyo continuo a la diada en el hogar, y (6) sobrecarga del cuidado: soporte social para el cuidador familiar. Conclusión. Los pacientes y familiares en cuidados paliativos experimentan un amplio rango de necesidades durante el proceso de transición entre el hospital y el hogar, que en ocasiones no están cubiertas por parte de los profesionales de la salud. Esta revisión evidencia la necesidad de seguir investigando sobre las experiencias de estas familias, especialmente en la etapa previa al traslado al domicilio.

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Fuente de los datos: Dialnet