Impact of Fragile X Syndrome on Their Families
- Concha Iriarte-Redín
- Manuel Soriano-Ferrer
- Beatriz Hidalgo-Alés
ISSN: 1135-755X
Año de publicación: 2021
Volumen: 27
Número: 1
Páginas: 93-99
Tipo: Artículo
Otras publicaciones en: Psicología educativa
Resumen
El objetivo del presente estudio es describir las alteraciones conductuales y emocionales en el síndrome de X frágil (SXF) y analizar las reperecusiones de tener un miembro con SXF en diferentes aspectos del funcionamiento familiar. Participaron 79 padres con un miembro con SXF y 80 padres con un miembro con desarrollo típico. Los resultados mostraron que entre el 17% y el 66% de los niños y adolescentes con SXF mostraron trastornos conductuales y emocionales significativos y menos comportamientos prosociales. Además, después de controlar las dificultades emocionales y de comportamiento, nuestros resultados mostraron que las familias afectadas por SXF experimentaron un impacto más negativo en los sentimientos relativos a la crianza de los hijos, las finanzas, los hermanos y el grado de dificultad de vivir con un niño o adolescente con SXF y más capacidad de adaptación familiar y cohesión que el grupo de comparación. Como conclusión, nuestros resultados destacan que en la práctica clínica es importante tener en cuenta estas diferencias al apoyar y asesorar a las familias afectadas por SXF
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