Development of a scale to gain insight into the experience of living with chronic heart failurethe UNAV-Experience of Living with Chronic Heart Failure Scale

  1. Maribel Saracíbar-Razquin 1
  2. Amparo Zaragoza-Salcedo 1
  3. Jesús Martín-Martín 1
  4. José Luis Cobo-Sanchez
  5. Santiago Pérez-García 2
  6. Aurora Simón-Ricart 3
  7. Pilar Ara-Lucea 3
  8. Leticia Jimeno-San Martín 3
  9. Montserrat Ducay-Eguillor 3
  10. Noelia De La Torre-Lomas 4
  11. Jesica Pérez-Herreros 5
  12. Maddi Olano-Lizarraga 1
  1. 1 Universidad de Navarra
    info

    Universidad de Navarra

    Pamplona, España

    ROR https://ror.org/02rxc7m23

  2. 2 Clínica Mompía. Mompía
  3. 3 Clínica Universitaria de Navarra
    info

    Clínica Universitaria de Navarra

    Pamplona, España

    ROR https://ror.org/03phm3r45

  4. 4 Hospital 12 de Octubre, Madrid
  5. 5 Hospital Universitario Marqués de Valdecilla, Santander
Revista:
Anales del sistema sanitario de Navarra

ISSN: 1137-6627

Any de publicació: 2024

Volum: 47

Número: 1

Pàgines: 55-66

Tipus: Article

DOI: 10.23938/ASSN.1071 WoS: WOS:001208941200002 DIALNET GOOGLE SCHOLAR lock_openAccés obert editor

Altres publicacions en: Anales del sistema sanitario de Navarra

Resum

Background. To date, there are no tools for the nursing staff to gain systematic insight on the experience lived by patients with chronic heart failure. The objective of this study was to develop a scale for this purpose.Methods. The study was conducted between January 2018 and December 2020 in three Spanish hospitals. The process de-scribed by DeVellis was used for the development of the scale. The items were built based on a phenomenological study and a systematic review of the literature. Next, feedback from a panel of experts was obtained, the scale was administered to a sample of patients with chronic heart failure, and a cognitive interview and an observational study were conducted to create the final version of the scale.Results. The first version of the scale had in seven domains and 76 items. After its evaluation by a panel of experts, it was reduced to a second version with six domains and 55 items. Following the administration of Version 2 to 17 patients (58.8% male, mean age 59.53, 70.6% classified as NYHA functional class II), five items were modified and two eliminated. Thus, the third version of the UNAV-CHF Experience Scale was com-posed of six domains and 53 items.Conclusions. This study presents the development of the UNAV-experience of living with chronic heart failure scale. It is an original and novel instrument that allows systematically explore this experience. A larger-scale study is necessary to confirm the validity of our scale

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